By TINA KELLEY
Published: December 21, 2007
BRICK TOWNSHIP, N.J. — An autistic boy is discovered standing in the middle of a busy road, on his way to the beach. A young girl with autism outsmarts a number of locks, leaves the house before her mother wakes up and is found, naked but alive, in a neighbor’s pool.
At a recent training for police officers here, both cases illustrated the often delicate task of dealing with people who suffer from autism, a devastating neurological disorder that often strikes in childhood and that impairs one’s ability to communicate and to relate to others.
In the training, the officers were taught that turning off flashing lights and sirens on a police car could make the difference between a peaceful or chaotic encounter, and that if they asked someone with autism if they wanted to waive their rights, they might find that the person waved back at them.
People with developmental disabilities, including autism, have up to seven times more contact with law enforcement officers than others, according to an article in the F.B.I. Law Enforcement Bulletin in April 2001.
A co-author of the article, Dennis Debbaudt, who is also the author of “Autism, Advocates and Law Enforcement Professionals,” led the training. He noted that a 2007 study by the federal Centers for Disease Control and Prevention showed that 1 in 150 children in New Jersey have received a diagnosis of autism, a rate 15 times higher than previous estimates and among the highest in the country.
But when Mr. Debbaudt asked whether any of the police officers, from departments throughout New Jersey, had received training on autism, either at police academies or on the job, only a few raised their hands.
The training, sponsored by Parents of Autistic Children, a nonprofit service group based in Hazlet, featured videos, lectures and the personal accounts of parents whose children have a form of autism. Among them were Mr. Debbaudt and Gary Weitzen, director of the parents’ group, whose son was the one found in the middle of the road, headed for the beach.
Mr. Debbaudt told the officers that they should understand autism “for the safety of others, and so you can go home safe to your families, so you can make the best use of your time and resources, enhance your communication skills and avoid litigation.”
He cited the case of Calvin Champion Jr., a 32-year-old man with autism who died in 2000 after Nashville police officers used pepper spray on him and subdued him. His family filed a federal lawsuit against the police and the social service agency caring for him, and was awarded $4.4 million.
Mr. Debbaudt said he had heard of 6 to 12 cases each year in which people with autism are harmed, hit with a stun gun or killed by law enforcement officials.
The officers were told to take plenty of time and be calm when interviewing autistic people. Some are crime victims, some are suspects, but the majority who come to the attention of the police have wandered away from their caregivers, often without an understanding of the dangers of traffic or open water, which often attracts them. In fact, drowning is a leading cause of death for people with autism, Mr. Debbaudt said.
People with autism may be very afraid of or very drawn to police dogs, Mr. Debbaudt said. They may be attracted to an officer’s badge and try to grab it, and they may panic if their routines are broken, if their favorite objects are taken from them, or if surrounding sights, sounds and smells overwhelm them.
Similar training sessions have been offered around the country. Autism Speaks, a nonprofit advocacy and fund-raising group, worked with the Chicago Police Department last spring, and it is working on a safety tool kit for all first responders, said Lisa Goring, director of family services for the group.
“We’ve heard from families as well as from professionals that they just need more instruction, certainly in terms of first responders understanding that a person with autism may not respond appropriately or may not respond at all when given a command,” she said.
A bill cosponsored by State Senator Loretta Weinberg would require autism awareness programs statewide for emergency medical technicians, police officers and firefighters. The bill was passed by the Assembly in March, and awaits action in the State Senate.
Monday, December 24, 2007
Friday, December 21, 2007
Mark you calendars for the YAI/NIPD conference May 5-9 2008 in NYC
Featured topics include:
· Advocacy/Self-Determination
· Management/Supervisory
· Aging
· Media/Public Relations
· Autism Spectrum Disorders
· Profound ID/DD
· Clinical Issues & Practices
· Psychopharmacology
· Day Services
· Quality of Life
· Dual Diagnosis
· Residential Services
· Early Childhood
· Sexuality
· Early Intervention
· Special Education
· Employment Training
· Staff Training
· Family Supports
· Technology
· Health Care/Medical
· Transitions
· Inclusion
· Women's Issues
· Legal, Ethical & Policy Issues
· Workforce
Life Planning
· Advocacy/Self-Determination
· Management/Supervisory
· Aging
· Media/Public Relations
· Autism Spectrum Disorders
· Profound ID/DD
· Clinical Issues & Practices
· Psychopharmacology
· Day Services
· Quality of Life
· Dual Diagnosis
· Residential Services
· Early Childhood
· Sexuality
· Early Intervention
· Special Education
· Employment Training
· Staff Training
· Family Supports
· Technology
· Health Care/Medical
· Transitions
· Inclusion
· Women's Issues
· Legal, Ethical & Policy Issues
· Workforce
Life Planning
Thursday, December 20, 2007
Never Lose Your Children at the Mall Again!
The ionKids system allows you to monitor up to four tagged objects at once. When the individual leaves a user-defined range, an alarm sounds on the portable Base Unit carried by the parent. The Base Unit can be put into "Find Mode," used to assist in directing parents back to their children. Each Base Unit can monitor up to 4 tamper-proof Bracelets simultaneously, allowing up to 4 children to be monitored from a single Base Unit. Additional bracelets sold separately.
If the tamper-proof Bracelet is removed from the child's wrist, a tamper alarm sounds instantly at the Base Unit to alert parents. Because the ionKids Child Monitor & Locator signal is not transmitted via cell towers, there are no recurring monthly charges. For added peace-of-mind, this unit comes with a 1 Year Factory Warranty against product defects.
For more information visit the ionKids website http://www.ion-kids.com/index.html or their licensed distributor's website, BrickHouse Security http://www.brickhousesecurity.com/vbsik.html
If the tamper-proof Bracelet is removed from the child's wrist, a tamper alarm sounds instantly at the Base Unit to alert parents. Because the ionKids Child Monitor & Locator signal is not transmitted via cell towers, there are no recurring monthly charges. For added peace-of-mind, this unit comes with a 1 Year Factory Warranty against product defects.
For more information visit the ionKids website http://www.ion-kids.com/index.html or their licensed distributor's website, BrickHouse Security http://www.brickhousesecurity.com/vbsik.html
Gene Study Shows Promise for Autism
REUTERS NEWS SERVICE
December 20, 2007; Page D7 WASHINGTON --
Genetic engineering can correct the worst symptoms in mice of Fragile X syndrome, the most common inherited cause of mental retardation and autism, researchers reported.
They said it is possible a drug could do the same thing as their gene tinkering, perhaps providing a treatment for Fragile X syndrome and other causes of retardation and autism, too.
Fragile X syndrome affects 90,000 to 100,000 Americans. It is caused by a mutation in a gene on the X chromosome. There is no treatment.
Howard Hughes Medical Institute investigator Mark Bear at the Massachusetts Institute of Technology and colleagues created this mutation in mice and corrected their symptoms by adding a few more genetic tweaks. They said an experimental class of drugs could have the same effect.
December 20, 2007; Page D7 WASHINGTON --
Genetic engineering can correct the worst symptoms in mice of Fragile X syndrome, the most common inherited cause of mental retardation and autism, researchers reported.
They said it is possible a drug could do the same thing as their gene tinkering, perhaps providing a treatment for Fragile X syndrome and other causes of retardation and autism, too.
Fragile X syndrome affects 90,000 to 100,000 Americans. It is caused by a mutation in a gene on the X chromosome. There is no treatment.
Howard Hughes Medical Institute investigator Mark Bear at the Massachusetts Institute of Technology and colleagues created this mutation in mice and corrected their symptoms by adding a few more genetic tweaks. They said an experimental class of drugs could have the same effect.
Wednesday, December 19, 2007
Affordable shows and activities for teens during Sundays, evenings, and vacation time!
ABOUT HIGH 5
High 5 Tickets to the Arts is a non-profit organization dedicated to making the arts affordable for teens. Through High 5, teens ages 13 to 18 can buy $5 tickets to the best of New York City dance, music, theater and visual arts events all year round.
In order to purchase tickets, all you need is an interest in the arts, a school ID and $5. Each teen may buy one extra $5 ticket for an adult if you'd like to go with a parent, teacher or mentor. If you would like to go to an arts event as a group, use our Take 5 Program to buy 5 tickets at $5 each and get a sixth ticket free to use for a teen or adult.
If you are interested in the visual arts, tickets to museums are two for $5 every day. We also have theater, dance, symphonies, Hip-Hop, film and spoken work, so check out our Events & Shows page for the Events Calendar and Picks of the Week.
To purchase the tickets, you can do so online with a credit card or with cash at the High 5 office located at 1 East 53rd Street, 5th Floor (near the 5th & 53rd stop on the E or V lines). Or call us at 212-750-0555 and we can process your order over the phone during office hours.
All the arts, all the time, all for $5.
Get all this and more at the teen address for the arts: www.high5tix.org
High 5 Tickets to the Arts is a non-profit organization dedicated to making the arts affordable for teens. Through High 5, teens ages 13 to 18 can buy $5 tickets to the best of New York City dance, music, theater and visual arts events all year round.
In order to purchase tickets, all you need is an interest in the arts, a school ID and $5. Each teen may buy one extra $5 ticket for an adult if you'd like to go with a parent, teacher or mentor. If you would like to go to an arts event as a group, use our Take 5 Program to buy 5 tickets at $5 each and get a sixth ticket free to use for a teen or adult.
If you are interested in the visual arts, tickets to museums are two for $5 every day. We also have theater, dance, symphonies, Hip-Hop, film and spoken work, so check out our Events & Shows page for the Events Calendar and Picks of the Week.
To purchase the tickets, you can do so online with a credit card or with cash at the High 5 office located at 1 East 53rd Street, 5th Floor (near the 5th & 53rd stop on the E or V lines). Or call us at 212-750-0555 and we can process your order over the phone during office hours.
All the arts, all the time, all for $5.
Get all this and more at the teen address for the arts: www.high5tix.org
NEW THERAPY GROUP - youth ages 9-12 with high-functioning ASDs
The Fay J. Lindner Center for Autism and Developmental Disabilities is excited to announce a
NEW THERAPY GROUP!
Is your child anxious?
Do lots of things scare your child?
Does your child have worries?
Does homework make your child feel stressed and overwhelmed?
Are your child’s anxieties and fears preventing them from participating in activities?
Do changes make your child upset?
If any of those difficulties pertain to your child, then this may be the right group for them! This new group will combine visual and verbal techniques to teach coping skills and reduce anxiety over the course of 8 weeks. This group is suitable for:
youth ages 9-12 with high-functioning ASDs (average range verbal IQ) and some conversational skills
There will be some verbal demands in the group but the group will also utilize visual strengths.
The anxiety and coping skills group for children between ages 9-12 will be starting soon on Tuesdays from 5 to 6pm.
Please contact Samara-Pulver Tetenbaum at
(516) 802-8600 to sign up.
NEW THERAPY GROUP!
Is your child anxious?
Do lots of things scare your child?
Does your child have worries?
Does homework make your child feel stressed and overwhelmed?
Are your child’s anxieties and fears preventing them from participating in activities?
Do changes make your child upset?
If any of those difficulties pertain to your child, then this may be the right group for them! This new group will combine visual and verbal techniques to teach coping skills and reduce anxiety over the course of 8 weeks. This group is suitable for:
youth ages 9-12 with high-functioning ASDs (average range verbal IQ) and some conversational skills
There will be some verbal demands in the group but the group will also utilize visual strengths.
The anxiety and coping skills group for children between ages 9-12 will be starting soon on Tuesdays from 5 to 6pm.
Please contact Samara-Pulver Tetenbaum at
(516) 802-8600 to sign up.
Tuesday, December 18, 2007
Free Park Pass from the National Forestry and Wildlife Division
Park Pass
A great benefit from the National Forestry & Wildlife Division. You may or may not know about.
It is a free lifetime access pass for any person with a disability or forthe caregivers of a person with a disability. It allows access to ALL national parks for free.All that is required is a letter from the physician stating the disability and you take it to your local National Forestry & Wildlife Division to get the pass. Each pass will admit up to 4 adults and children under 16 are always free.
This link answers all the questions:http://store.usgs.gov/pass/access.html
A great benefit from the National Forestry & Wildlife Division. You may or may not know about.
It is a free lifetime access pass for any person with a disability or forthe caregivers of a person with a disability. It allows access to ALL national parks for free.All that is required is a letter from the physician stating the disability and you take it to your local National Forestry & Wildlife Division to get the pass. Each pass will admit up to 4 adults and children under 16 are always free.
This link answers all the questions:http://store.usgs.gov/pass/access.html
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