Thursday, April 10, 2008

Online Study to Access Parental Perceptions & Needs to Develop Future Interventions & Resources

Online Study to Access Parental Perceptions & Needs to Help DevelopFuture Interventions & ResourcesDear Parent,There are various needs associated with parenting. These needs may bedifferent for parents of a child who may experience some uniquecognitive, behavioral, educational, and emotional difficulties. You areinvited to participate in a study that will assess parental perceptionsof various needs related to raising a child with Asperger Syndrome orAutism. This study is being conducted as part of a DoctoralDissertation by Polly Robinson, MS, school psychologist, under thesupervision of Mark D. Terjesen, Ph.D., Department of School Psychology,St. John's University, Queens, NY. Participation in the study will include the completion of four briefonline questionnaires. The first will include background information onyour family. The second will ask questions regarding behaviors relatedto your child's diagnosis. The third will assess your impressions ofthe needs of your family. The parental needs assessed will includeparent education, educational needs for your child, your child'ssocial/behavioral needs, your own needs, and access to communityservices. The survey will also contain several items regarding theavailability of resources for you and your child. You will be asked torate how helpful you have found these resources and if they have beenused in the past. Finally, you will be asked to complete a shortmeasure of parental stress. Determining the most important needs of families with children willprovide future program developers and school and mental healthprofessionals with critical information necessary for developinginterventions and resources for parents of children with AspergerSyndrome or Autism. If you would like to participate in this studyplease go to the following web address to access the consent form:http://irsurveys.stjohns.edu/4/Polly/You will need to enter the password 1234 and then click on start toenter the survey.As a token of my appreciation for your participation in the researchstudy, all participants will be given the opportunity to enter into alottery to win a $50 gift certificate to Borders Book store aftercompletion of the surveys.Thank You, Polly Robinson, MSSt. John's University, Doctoral CandidatePatricia R. SchisselPresident, AHAAsperger Syndrome and High Functioning Autism Assoc.PO Box 916Bethpage, NY 11714516.470.0360 p

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